‘What use is music your body can’t hold, that can’t take you from this world?’ Each of these poems is a portrait of someone with or reputed to have had Marfan Syndrome. Many of the poems emerge out of personal interviews, while others are portraits of public figures: Abraham Lincoln, Akhenaten, Mary Queen of Scots , Edith Sitwell, Niccolo Paganini, John Tavener, Sergei Rachmaninov, and Robert Johnson, among others.
Get our latest book recommendations, author news, and competitions right to your inbox.
Thank you for signing up, fellow book lover!
Tell us what you like and we'll recommend books you'll love.